Concealing an illness is like keeping a beach ball under water.
The lesion is in the area of my brain that is responsible for motor function, so I have continual chronic pain in my left arm from elbow to fingertips and the right side of my body from my ear to my breast area.
In a way, I have simplified my life by setting priorities.
My Mt. Rushmore of hero worship would include Ralph Waldo Emerson, Marcus Aurelius, Frank Sinatra and Barry White.
I never expected in a million years that I would have the honor to become an advocate of women's health care and education, and I'd dive on a live grenade to get this message out, so thank you for this forum.
I still when I wake up hit the ground running; and having an illness, I'm only one of hundreds of thousands of people that live with an illness, and I'm just in awe of the bravery and dignity of the people I see at the hospital.
A lot of people asked me if it was frustrating not having a clear specific diagnosis, but I didn't mind, I just chose the most optimistic diagnosis.
In the beginning, when I first found out I had a disease that was incurable, emotionally I had to get used to the idea of being sick before I could think about making any other major decisions in my life.
It really is a blessing when two people who are so full of dignity and kindness and really live to make the world a better place get together.
I don't have feeling in my feet to my fingertips; I also have active lesions in my bone marrow and in my eyes.
I did as much research as I could and I took ownership of this illness, because if you don't take care of your body, where are you going to live?
I am a bit of a Cheap Pete, but I do spend a fortune on books and false moustaches and practical jokes.
My family has been amazing, and they understand how blessed I am. They've been able to keep my sense of humor.
I am enormously honored to be one of the spokesmen of the New Age Womens Health Campaign, so you'll be seeing me in public service announcements and public appearances supporting the campaign.
Everyone who has sarcoidosis is affected differently.
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